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#chiariwarrior

Posts tagged as #chiariwarrior on Instagram

13.427 Posts

So thankful that @littlest_warrior has a chiari warrior shirt!! Out of all the obstacles scarlet has faced this one is one of the most devastating because it almost took her life at 2 months old. She had major brain surgery to save her life but it left her with breathing and digesting problems as well as facial palsy and dysphagia. Scarlet is the epitome of a chiari warrior ❤️ thank you again @littlest_warrior for spreading awareness to an underlying threat in kids with Spina Bifida!! #littlestwarrior #spinabifida #hydrocephalus #chiarimalformation #chiariwarrior #chiaristrong #spinabifidastrong #warriormama #inclusionmatters #spreadingawareness
"Nothing is more beautiful than a real smile that has struggled through tears"  I woke up crying this morning because my headache was intense, then my daughter laid next to me and asked if we could still come to the water park today since yesterday I couldn't drag myself out the house till after 4pm. I have one more week till my surgery then I pray, PRAY, I get some relief. It's been 13 months since this headache started 🤯  #fuckchiari #chiariwarrior 💜 #chiariawareness #brainsurgery 😖🧠😳 #countdown #alwayssmiling 💋 #beautifulday #beautifullife #blessed #queenlife #blondeshavemorefun 🤷🏼‍♀️ #waterplay #fair #californiastatefair #sactown #picoftheday #quoteoftheday #sunshine #cantstopwontstop #staystrong #girlswithink #inked
Eesh, a volume increase after a block full of triples, doubles, and singles is so humbling. Felt like I barely squeaked by this morning:  1. 4x6 deadlift, top set 105kg/231lb 2. 4x6 squat, top set 94kg/207lb  Not shown: Leg extension 3x8, glute bridge hold 4x30secs
Thank you @thebebrand for creating a headband that doesn’t hurt my surgery site from #chiarimalformation AND stays in place during my workout!!!! . . . #chiariawareness #chiariwarrior #chiarilife #invisibledisease #chronicpainlife #chronicpainsurvivor #chronicpainawareness #chronicpainfighter #sjogrens #spoonielove #spooniemom #spooniewarrior #spooniefitness
Every bit of strength I have is going to my beautiful angel! Prayer warriors, send em up! You got this baby!  #stpeterschildrenshospital #nuerosurgery #chiarimalformation #chiariwarrior
“Maybe the hardest part of life is just having the courage to try.” -Rachel Hollis  7 months ago I gave up ever excuse and gave it my all no matter what. Who cares that I was exhausted after commuting and teaching all day in my first year. Who cares that the house needed to be cleaned ....there was laundry and dinner needed to be made. Who cares that “ankle hurt” ............WHO CARES!!!!! My drive home everyday I would say ... “ Drink you yellow drink , push play, and get the hell over yourself and all the excuses!” .... and I did... what’s stopping you?
Everyone, meet Brantley!! Diagnosed with #spinabifida & a #chiariwarrior but letting NOTHING stop him!!! His MAMA is a warrior and this sweet boy was BORN TO EXPLORE!!! @brantleys_big_adventure YOU inspire me & I feel honored that you chose Little Legend for your big adventure!!! ❤️❤️❤️ . . #spinabifidaawareness #spinabifidastrong #borntoexplore #adventure #myinspiration #strongandmighty #momstrong #support #thankful #boymomlife #boymom #beachlife #explorepnw
He hasn’t left my side ❤️ He sat beside me all night in a small, metal fold out chair. I’m having to make him go nap while my mom relieves him. I’m so blessed with the best family and friends.  I’m swollen, splotchy and red. But, I’m WAY ahead of the curve. I’ve been alert since I got out of surgery. My nurse said I’m one of the toughest brain surgery patients he’s ever seen.  Pain is manageable. This is definitely the hardest thing I’ve ever been through, but not nearly as traumatic as I imagined.  I’m doing really well ❤️❤️❤️ Thanks for the prayers. God hears you!!! #thisismyfightsong #connectivetissue #endurence #connectivetissuedisorder #chiari #chiaristrong #chiariwarrior #chiarimalformation #chiariawareness #elhersdanlos #elhersdanlossyndrome #brainsurgery
So recently, it’s safe to say that Hattie and I have been absolutely smashing it health wise! Don’t get us wrong, we’ve had our bad moments but when those moments used to be weeks at a time, it’s something worth celebrating! Today I have woken up feeling completely out of sorts. So dizzy I can’t stand up without feeling like I’m going to vomit exorcist style. But something in me mentally has completely changed for the better. I look at this photo of my desk at work and am instantly reminded of all of the wonderful people who believe in me and encourage me to grow everyday, ignoring my constant setbacks. I think it’s key to remember that every time you have a ‘setback’ you are learning and growing as a person and actually propelling yourself forward. Today I am grateful to be on the planet no matter what my limitations are right now in this moment. LIFE IS FOR THE LIVING. And in the wise words of Stephen Hawking: ‘Where there is life, there is hope’. Have a wonderful day fellow Chiarians and spoonies ❤️
It may be 10:30 at night but that didn't stop me from pressing play!  Day One is in the books!  Some days I'm pretty sure I'm gonna die during the workout. 😂😂😂 But damned if I don't love how I feel afterward! 😍💪 #chiariwarrior #chiaristrong #whoisgoingtojoinmenext #liift4
And this is the results of my fun for my birthday. 😭 this is why I eat very strict, I knew this would more then likely happen, but it’s so so bad! #chiarimalformation #chiariwarrior #chiariawareness #chiarisucks #headache #detox #youarewhatyoueat
Well this day didn’t go according to plan. Little guy had some very scary moments again today. Poor kid can’t catch a break. I think this issue was related to his chiari. We will see. #chiarimalformation #chiariwarrior
Día de intenso dolor y decidí salir a trabajar así está mañana ☹️ espero se mejore, si no.. pues no 😒 Intense pain today but i decided to keep going and go to work ... I kind of regret it now. #chiariwarrior #chiarimalformation1 #chronicillness #chronicpain #dolor #vetedolor #embraceyourchallenges #brainsurgery
A HUGE thank you to my #chiari sister @audiesmama for this lovely and unexpected gift!!!! She knew I needed an emotional pick me up and then these lovelies show up in the mail today!! It’s always the little things, y’all!! Love you so much, Emma!!!! #chiarimalformation #chiariwarrior #zipperhead #brainsurgerysurvivor #chronicpain #chronicillness #spoonie
If you haven’t heard.. I’m having brain surgery in a week! Yep. You read that right. But guess what? It’s ok! Because God is good and works in mysterious ways. If it wasn’t for my freak accident, I may have never gotten to the bottom of my health issues. Watch the video linked in my profile for the full story. I hope it encourages you to continue walking and praising God even during difficult times - He’s got you! 💕 . . . . . #christianblogger #christianvlogger #christianvlog #chiarimalformation #chiariwarrior #chiaristrong #chiariawareness #christianmusician #christianwoman #strongwomanofgod #womanoffaith #godisgood #godisgoodallthetime #healingjourney #healingpower #chiari #chiarimalformationawareness
Motivation Monday: Always look forward to our future -AJP  Photographer: @focus_one_media 📸 MUA: @jas_lavish_facez artist 👩🏿‍🎨 Assistant: @riahtravel 💼 #photoshoot 📷🎞 #motivationmonday  #itisnotaboutus #itisaboutjesus  #receivein2018 🤲🏾#2018istheseasonofelevation #newtransition ✈️⚠️ #powergirl 🔋🔌⚡️ #nubianqueen 👸🏾 #insanefaith 🙏🏿 #faithwalker 👣👣👣 #faithchanger 👁 #walkingmiracle 💃🏾 💜  #chiariwarrior #chiarisurvivor #chiarilife #curechiari #arnoldchiarimalformation (brain disorder) #strongsurvivor
Look at me over diagnosing myself #onspot  I need an honorary #doctoratedegree because I’m real good at freaking diagnosing crap 💩  #plantaris #tendonrupture #eds #chiariwarrior #createyourbestlife #hashimotoswarrior #keepgoing #dontgiveup #morephysicaltherapy 🤦🏻‍♀️
Sorry I haven’t been updating that much lately. Life doesn’t stop for Chiari. It had only been a little over a week since moving to PA. On Friday night I had to fly back to Florida for my soon to be sister in laws bridal shower. (I’m the maid of honor too). I should be wearing my neck brace, but I couldn’t. I think I just wanted a few hours of normalcy. No one asking me what’s wrong or why I’m wearing it. Wednesday marks 6 weeks of the neck brace trial. Even though yesterday didn’t go as expected..... I still got to see my brother who is in the picture with me, who is my best friend in the world. No matter what he is always there for me.  This day wasn’t all sunshine and flowers like it should have been. I ended up getting into an argument with a very close friend over something silly. Neither of us have reached out to each other.. and I leave to go back to PA tonight. If you made it this far... thank you... but more importantly... when is it time to cut ties with someone? (not the bride lol). How do you know when it’s time to walk away from someone? Even if they were once your best friend? 💜💜 to you all. #chiari #chiarimalformation #chiariwarrior #chiaristrong #chiarisucks #syringomyelia #worththefight #eds #cci #chronicillness #chronicillnesswarrior #chronicpain #invisibleillness #invisibleillnessawareness #spoonie
Nursing my Ragnover today and finding random unexplained bruises and noticing a toenail lifting off.  #ragnarnwp ,#ragnover ,#toenailsareoverrated ,#findyourinnerwild ,#findyourinnervoice ,#teamthatswhatshesaid ,#12runners200miles ,#oneishmiletogo ,#runeatsleeprepeat ,#runnergirl ,#runningrelay ,#beerrunner ,#chiariwarrior ,#takethatchiari ,#upperleftisbest ,#wheredidthisbruisecomefrom ,#seeyounextyear,#ragnarteamcaptain

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