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#wemustfindacure

Posts tagged as #wemustfindacure on Instagram

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“Angels rise in darkness”  #repost @yolanda.hadid with @get_repost ・・・ ❤️ The fenomen, the free thinkers who don’t succumb to fear but demonstrates resilience, values and vision in the face of exponential challenge...... Thank you god for granting me all the above... Resilience it took to battle through the public ridicule of those doubting my chronic Lyme diagnosis as I fought my way to remission with the unwavering core support of my 3 children, my reason for living....... I will never forget the confusion, the fear and frustration I felt for the loss of my life while fighting a disease that has no cure........ It will be engraved in my consciousness forever! With a heart full of love and compassion I will stand for the injustice that there are millions of people suffering like I did without the support of healthcare providers or finances to sustain a life in this endless lonely journey.  It’s what Keeps me awake at night!  The lack of support, compassion and understanding for all those suffering from invisible disabilities is something we need to work on as global citizens.  I did not find a cure but I will keep this conversation alive until the day that we do.... This is not Singular, together we are a movement to bring change to the worldwide epidemic of invisible diseases.  So keep on fighting, one day at a time is good enough..... You might feel alone but know that our community is connected energetically and we are in it to win it!! Thank you @brilliantmindsstkhl for letting me be part of this extraordinary conference and share my story amongst the many brilliant minds that are changing the world.  Sweden I love you, you culture is a perfect reminder of what’s important in life 🙏 #consciousness #believeme #lymediseaseawareness #wemustfindacure #affordableforall
❤️ The fenomen, the free thinkers who don’t succumb to fear but demonstrates resilience, values and vision in the face of exponential challenge...... Thank you god for granting me all the above... Resilience it took to battle through the public ridicule of those doubting my chronic Lyme diagnosis as I fought my way to remission with the unwavering core support of my 3 children, my reason for living....... I will never forget the confusion, the fear and frustration I felt for the loss of my life while fighting a disease that has no cure........ It will be engraved in my consciousness forever! With a heart full of love and compassion I will stand for the injustice that there are millions of people suffering like I did without the support of healthcare providers or finances to sustain a life in this endless lonely journey.  It’s what Keeps me awake at night!  The lack of support, compassion and understanding for all those suffering from invisible disabilities is something we need to work on as global citizens.  I did not find a cure but I will keep this conversation alive until the day that we do.... This is not Singular, together we are a movement to bring change to the worldwide epidemic of invisible diseases.  So keep on fighting, one day at a time is good enough..... You might feel alone but know that our community is connected energetically and we are in it to win it!! Thank you @brilliantmindsstkhl for letting me be part of this extraordinary conference and share my story amongst the many brilliant minds that are changing the world.  Sweden I love you, you culture is a perfect reminder of what’s important in life 🙏 #consciousness #believeme #lymediseaseawareness #wemustfindacure #affordableforall
May 31st💚 The last and final day of May... AND #lymediseaseawarenessmonth! I will not continue to post daily, but WILL stay LOUD about my disease for many reasons, but especially these two:  1. I don't want anyone to suffer with an "unknown illness" any longer. Visiting doctor after doctor...specialist after specialist, and not finding any answer. There IS an answer! Fight for it, follow your heart and FIND the root cause. I promise you, there IS one.  2. Because the Lyme community NEEDS to be LOUD, so the CDC will get HERE and get to WORK(well done, fellow lymie💚)! We NEED them to wake up and put the resources together and help us FIGHT THIS awful disease!  The pictures are to show you some "behind the scenes"...as "us lymies tend to look normal". We are not...we are just good at "faking being well". It's easier to respond "I'm fine", when someone asks us how we are, rather than to get into the details. Speaking for myself...I spend each and every day treating, fighting, detoxing and resting in hopes to heal myself and reach my goal...remission! I thank each and every single one of you, who have followed along with my daily posts, shared them, or reached out to ask any questions. I hope some education and knowledge was gained in this last month. So much love to you all💚💚💚💚! #illkeeponfighting  #lymedisease #lymediseaseawareness #createawareness #awareness #wemustfindacure #letsgetlymeloud #cantstopwontstop #lymekills #lymewarriormode #myjourney (Repost from last year)
1st pic: feeling defeated while expecting a miracle , 2nd pic: victory! May is Lyme Disease awareness month. Our family went camping in Bridgeport, CA. In May of 2013 on Memorial Day weekend. Deer season and with a rookie camper (mom). I didn't want to spray chemicals on my littles. They were both bit by ticks, long story short, it stole 3 years of our families 'normal'. An unwelcome guest took residence in 2 of my kid's bodies. Pictures of my son are from his surgery pre/post. I scratched (big no no) the tick off him, it was a teeny black dot that I thought was a thorn from the brush we were hiking by. The first picture is our daughter after a day of school, she "paid to play". With pain ripping through her body like a 90 year old arthritic person. Migraines that no one should experience let alone a 4 yr old. The next picture of her is today, 4 years later, almost 2 yrs healthy. She's running and not "paying for it later" and me?... crying, in awstruck wonder, of how we made it to the other side. She and her brother healed! Thank you Jesus! To Him be the glory! Now I only feel it is right to lift up those who are still battling this disease or perished from it in prayer. Also to raise awareness for those planning hiking and camping trips. Be aware, it isn't an "East Coast only thing". It is here in US, and yes in CA. Learn the facts and prevent an unfortunate  experience like ours. Thank you.♡ #lymedisease #lymediseaseawarenessmonth #takeabiteoutoflymedisease #lymechallenge @yolanda.hadid #ilads #cdc #awareness #wemustfindacure #globallymealliance #expectmiracles #prayerworks #llmd #llnd
My beautiful mom ♥️ #wemustfindacure #soontobecancersurvivor
17 Mai kom.. og gikk. Jeg merket søvnen tok meg i taxien hjem.  Varslet at jeg var gått altfor langt over og da gjør den ofte så. Gjespene kommer tettere og tettere og verden blir slørete rundt meg.  Jeg bare stopper.. Sakte men sikkert stopper jeg, og kroppen skrus av til bare eksistens. .  Vi er kommet hjem, kommet inn. Dagen har vært fantastisk.. "Jeg vil så gjerne ha deg med", sier minste, for byggefeltet lager videre feiring i gata.. "Ja, jeg vet det", svarer jeg mellom gjesp og halvlukkede øyner. "Men jeg er med", sier eldste, keepern. "Oss to, snuppa, det blir bra. Så kryper vi oppi til mamma etterpå med is og en god film. Kom igjen, jeg er der." Jeg nikker godkjennende til min eldste engel sine ord.  Og mamma er her, sier jeg, skjønt jeg aner ikke om ordene kommer ut eller lyder utenfor tankene mine... . På en måte, mellom søvn og våkenhet, mellom sykdom og være mamma, går den dagen.. Fra 17 til 18, så er hjelpen tilbake. Dagen gis søvnig over til den som kan styre den, og heldigvis styres den godt. Vi vet det ikke er noen selvfølge. Men nå gjør den det. Nå går det på skinner selv når toget er sporet av.. Jeg sitter men sover, jeg ligger og forsvinner og mens jeg ligger sånn. Trår Bpa, og hjelpende venner til og lager gode planer. Takk Gud For gode planer, stødige rutiner og hjelpende hender.. Takk Gud sier jeg. Uten å tro At det finnes noen gud. Men takk uansett du/ det som Gjør at sånne dager, uker på ett vis henger sammen så jentene mine har det bra.  For det finnes ingenting viktigere enn at de to har det bra. 17 er blitt 23 og jeg kjenner det gryr av dag. Utenfor vinduet synger fuglene om sommer og lette strøk fra varme briser stryker over kinnet mitt i glippen fra vinduet. 17 mai kjennes enda, det vil den gjøre en stund. Jeg er gått fra søvnen til detoxen og her blir jeg til det er over. Men denne dagen.. Når stillheten senkes over huset, setter jeg meg ned på trappa, som for første gang en sommermorgen. Jeg
Lyme disease treatments are relatively more expensive than treatments for other diseases or conditions and sometimes result in families losing their possessions, electricity, water, and/or homes. 🙏🏼🙏🏼🙏🏼 In addition people can’t get jobs because they’re helping their children. In many cases, late stage Lyme graduates can’t get jobs because they’re too sick. I finished college (barely 😷)with a business and marketing degree but had to turn down leads bc of health. 🙏🏼🙏🏼🙏🏼 Most patients with late stage #lymedisease like me, Yolanda, and so many more, shell out six+ figures easily. Insurance doesn’t cover treatment... well they cover my dressing changes, flushes, and tubing. But not the treatment!? There are so many sick people that can’t get better, partially due to insurers such as @bcbsuy and organizations like the @cdcgov  There are 300,000 new cases of #lyme every year. That’s close to breast cancer and aids combined, and doesn’t include patients who have chronic Lyme.  #wemustfindacure that’s #affordableforall Thanks for speaking up for those who won’t be heard. @yolanda.hadid 💚💚💚 #cdcwakeup #cdcwakeuptolyme #doctorskeepyouroath #cdc #lymedisease #lymediseaseawareness #lymediseaseawarenessmonth #lymedontkillmyvibe #nevergiveup #love #epidemic #lymeepidemic #hapa #repost @yolanda.hadid with @get_repost ・・・ ❤️When you get to live to tell your story..... #lymediseaseawarenessmonth #wemustfindacure #affordableforall 💚💚💚💚💚💚💚💚
How many of you know or know of someone who has/ has had Chronic Lyme Disease or some sort of Chronic illness, even mental illness?  Please speak up! Sometimes the image you might think of what that looks like is far from the reality.  Let us remove the stigma surrounding sharing ones pain. Whether your struggle is mental, emotional, or physical.. people can relate.  Yes, some will be also triggered in a negative way because they won’t like what it makes them have to face within themselves.. but this is good because it is the catalyst for true healing! 🔥 May we create an Authentic world where we can lift each other up and heal together in all ways. #repost @yolanda.hadid with @get_repost ・・・ ❤️When you get to live to tell your story..... #lymediseaseawarenessmonth #wemustfindacure #affordableforall 💚💚💚💚💚💚💚💚
❤️When you get to live to tell your story..... #lymediseaseawarenessmonth #wemustfindacure #affordableforall 💚💚💚💚💚💚💚💚
Thx jazz & soul singer  @kandacesprings for taking @lymediseasechallenge with me. She is opening for @train & @hallandoatesofficial. 💚 #wemustfindacure #lyme #mayislymeawarenessmonth
Ute skinner solen sine herlige varme stråler.. Lettere klær har kommet frem og på, og skrubbsårene begynner allerede å danne små stier på den lilles bein. Skjønt er stien mindre nå, for hun er ikke så liten lengre. Jeg hører lyden av sykkelen som låses ut og klikket fra hjelmen. Den eldste setter avgårde til jobb med varmen som medvind.  For Sommeren er her, nesten.. Åå , jeg elsker sommer.. Lette klær, Varm kropp, lyder fra hagen og mindre smerter. Jeg savner å kunne gripe sommeren den første dagen, ta den imot med åpne ermer og lett gjøre verden sommerklar rundt oss.. Uten å tenke på at overgangen gjør først vondt før den lindrer.. For,  Mmm Varme.. Stabil, god, lun varme , du hjelper på så mye.. På smerter, på ryddigere tanker og lettere bevegelse. På frosten i kroppen, og stive ledd. Sommer og varme gjør verden litt mildere å bevege seg i... . En svak eim av beis trenger inn gjennom vinduet i mørket og avslører at helten er igang med å klargjøre plattingen for sommer og soling. Jeg lukker øynene og kjenner smaken.. Smaken av sommer, soling, solkrem, smaken av tre platting og badehåndklær.. Jeg maner frem solrike dager på skjæra og i båten.. Det er så nært, at det nesten er her hos meg... Det når nesten helt inn... Jeg trekker pusten dypt og kjenner at , Snart.. Snart er det min tur også.. Jeg er snart fremme hos sommer.  Bare spare litt til, lade opp til og over 17 mai.. så er jeg der.  Så kan fokus fullt og helt bare være på sommer.. . På varme.. På meg.. Snart.. . . I dag er den internasjonale me dagen.. Urørte og nedstøvet sko, settes ut og markerer de som mangler.. Ønsker du å støtte forskning sveip til neste bilde for mere info.. #thisshoesaremadeforwalking #millionsmissing #millionsmissingnorway #medhjerteforme #tålmodighet #energiøkonomisering #aktivitetsavpasning #me #myalgicencephalomyelitis #myalgiskencefalopati #savn #sol #varme #hverdagsliv #carpediem #vilhamer #melivet #medagen
May 11th💚 Not only is this disease debilitating, painful and horrifying...but it is also NOT covered by insurance(most of it), essentially leaving the patient to pay 100% of the treatment cost "out-of-pocket". When I say "treatment"(it differs for each lymie), I mean(for me), the cost of seeing an LLMD, boatloads of high quality supplements and herbs(most herbals are $80 a bottle😳), alpha-stim machine($800...plus all it's accessories), IV treatments(I won't even mention how much those cost), and all the other essentials needed to treat and detox...including: bathing goods, ozone therapy, colonics, reiki treatments, acupuncture, aromatherapy goods, chemical free EVERYTHING, use of a bio mat, infrared sauna treatments, etc... This disease isn't nicknamed the "rich mans disease" for nothing. It completely sucks. #lymedisease #lymediseaseawareness #createawareness #awareness #wemustfindacure #letsgetlymeloud #cantstopwontstop
A fellow realtor and friend passed yesterday morning and a dear sweet friend and Red Sox buddy passed in the afternoon.  It wasn’t a good day. But I know they are smiling and laughing now in their glory. #cancersucks #wemustfindacure #gonewaytoosoon💔
#lymediseaseawarenessmonth: I’m going to post some green photos, starting today, not only because it’s spring 🍃 but also because the colour green represents Lyme disease. The month May is Lyme Disease Awareness Month. * I got infected with Lyme disease and 5 other tick borne infections through a tick bite in 2005, when I was camping in Czech. My house doctor didn’t recognise the bullseye rash, so I got no treatment. In 2013, after 7,5 years of being ill they found out I have persistent (chronic) Lyme and co infections. I got a treatment, but I’m still sick and the doctors are telling me that I need to learn and live with it.. * So I want to raise awareness, because there are so many people from all over the world that are sick with Lyme and other tick borne infections. And there’s no cure yet. #wemustfindacure * So dear friends, ALWAYS check for ticks after you were lying on your belly in the grass taking beautiful photos. And also when you were hiking in nature, of course 🌿 Some people got infected through a tick bite in their own garden. So please, always check when you were in nature! Ticks are as small as 0.5mm to 2.5mm, so you need to check carefully. Also, not everyone is getting the characteristic bullseye rash after infection. * In the Netherlands there are 1.3 MILLION tickbites every year. 25.000 people are getting Lyme Disease and every year around 2.500 people stay sick after treatment. These are only the numbers from the Netherlands! It’s a tiny country, so you can imagine how high the numbers are worldwide. * Later this month I will share some more facts through my stories and I will join the #lymediseasechallenge where I’m going to #takeabiteoutoflyme, so stay tuned if you want to learn more. * * * #its_wow #fiftyshades_of_nature #nature_worldwide_miracles #nature_perfection #naturehippys_ #nature_fantastically #tv_flowers #nb_nature_brilliance #tv_allnature #lensloves_nature #petal_perfection  #flora_addict #ig_nature_naturally
May is the Lyme Disease and Tick-borne Illness Awareness Month. There are 390,000+ unsolved cases each year and this infection spreads rapidly all over the globe. For those who thought this is not a serious disease, you better do your best research, we mean the best research! Data found in the internet regarding this disease can't be fully trusted. Be sure to watch A Ticking Time Bomb: an In-depth Lyme Disease Film Documentary Free on Amazon Prime Video.  You are just One click away to #lymedisease Awareness: https://www.amazon.com/Ticking-Time-Bomb-Tamara-Balsamides/dp/B06XKGB5LS/ref=sr_1_1?ie=UTF8&qid=1520914016&sr=8-1&keywords=a+ticking+time+bomb  #lymediseaseawareness #determination #wemustfindacure #tbt #therapydog #hospital #lymedisease #lyme #centralline #yolandahadid #hadids #hadidfamily #believeme #spoonie #chronicillness  #monthofmay #may #prettypowerport #success #posturalorthostatictachycardiasyndrome #herxing #lymebrain #imissmyjob #chroniclyme
For those of you who will be in Atlanta, tomorrow May 3rd. We ask you to participate in sharing your story. You can either pre-record your 2 to 3 min video story on your phone or swing by at a designated time & location that we will update you on this evening. If your video is on an iPhone you can pass by and we can quickly upload it to a flash drive. If you prefer, you can pass by and we can film you! Please partake, we need to let the world know our struggle is real! See you tomorrow and at the rally on Friday, May 4th! #lymedisease #thelymearmy #lymewarrior #fibromyalgia #wemustfindacure #lymeawareness #morethanlyme #ignorance #awareness #epidemic #global #cure #headache #protest #atlanta #rally #hearus
We know many of you are who can't attend the rally are trying to send us your video stories but the files are too large. Please e-mail us at thelymearmy@gmail.com with the subject "VIDEO". We will send you a link where you will be able to upload your video. We urge you to please send us a 2 to 3 minute video of yourself sharing your story & medical struggle. Include how long it took you to get diagnosed etc. We look forward to seeing you during the live broadcast! #lymedisease #thelymearmy #lymewarrior #fibromyalgia #wemustfindacure #lymeawareness #morethanlyme #ignorance #awareness #epidemic #global #cure #headache #protest #atlanta #rally #hearus

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